17 April 2008...3:41 pm

And so it begins again…

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I am close to giving up. In less than24 hours, I have experienced hope, happiness, alarm, devastation, anger, sadness, hopelessness.

The insurance company switched my prescription to Lamisil, which is mainly for toe and nail fungus. Aside from intravin application, I did not find any reference to Lamisil (Terbinafine) as a treatment for systemic fusarium. I didn’t see this usage for skin infection either.

Intraconazole was referenced many times as the treatment. I felt it was working. I thought the prescription would go through, so I borrowed some from a friend. When I went to pick up my medicine, I was devastated after finding out they switched my prescription.

Lamisil is $350. Intraconazole is $515. For $200, they switched my medication. The fact that Intraconazole was the only medicine clinically tested for Fusarium infection didn’t matter, I guess. For $200, they are risking my life! This is so wrong, I don’t even know how to react. I have given up fighting. I’m too tired now to fight.

The photo below shows what happened to my hair after 2 days of Lamisil. When I was on Intraconazole, the hair loss stopped. I was so happy. The scars on my arms faded. You can barely tell I had any marks before. The scars didn’t return, but they stopped fading. They remain slightly visible.

I am very worried.


April 12, 2008

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